Louisiana Sickle Cell Commission


The mandate of the Louisiana Sickle Cell Commission (LSCC) is to improve the delivery of sickle cell services to affected people in all parishes of Louisiana.

 

Under the guidelines set out in Act 117 (SB 57) R.S. 40:2018.3, the charge of the LSCC is to:

  1. Ensure the delivery of sickle cell services to affected persons in all parishes in Louisiana and assist in establishing geographical service delivery boundaries.
  2. Promulgate guidelines for creating uniformity in the delivery of 28 services and the management of statewide programs.
  3. Submit budget recommendations to the legislature and the governor.
  4. Prepare and publish an annual report on sickle cell that includes:
    1. An assessment of the programs and activities aimed at sickle cell.
    2. A description of the level of coordination existing between the state and private stakeholders in the management and treatment of sickle cell.
    3. The development of a detailed action plan for battling sickle cell.

 

Membership is by appointment of the Governor, subject to Senate confirmation and is inclusive of a representative from each of he following:

  • The Sickle Cell Center of Southern Louisiana- Tulane University School of Medicine
  • Children's Hospital- New Orleans
  • The Louisiana Primary Care Association
  • The Baton Rouge Sickle Cell Anemia Foundation, Inc.
  • Northeast Louisiana Sickle Cell Anemia Technical Resource Foundation, Inc.
  • Sickle Cell Diseas Association of America, Inc.- Northwest Louisiana Chapter
  • The Sickle Cell Anemia Research Foundation, Alexandria
  • The Southwest Louisiana Sickle Cell Anemia, Inc.
  • The Secretary of the Department of Health or a Designee
  • One member of the Louisiana Senate
  • One member of the Louisiana House of Representatives

The commission has formed the following workgroups that focus on the mandates outlines in the Act:

  • Medical Services
  • Patient Navigation
  • Education & Advocacy
  • Data & Surveillance
  • Budget Recommendations