Family Resource Hub
A Navigator to Services for Families of Children with Special Needs
This Resource Guide has been developed to give families a source of information about programs and services for children with special health care needs. It contains basic descriptions of services provided, information on eligibility criteria, contact information, and web addresses. It is intended to serve as a starting place for research of both local and national resources that will empower families with tools necessary for daily life.
We recommend that you start with these links for helpful tips and tools regarding you or your family member's care:
- Medicaid Waiver Services offered to individuals with developmental disabilities
- Healthy Louisiana, a "one-stop-shop" for you to learn more about Medicaid and LaCHIP
- What You Should Expect From Your Pediatrician, a guide for how to find the best fit for your child's primary care
- General Helpful Hints for Families Attending Our Clinics, a primer for you and your child to prepare for your visit at one of our sub-specialty medical clinics
- Early Steps and System Point of Entry (SPOE), offering services to families of infants and toddlers
- Hospitals Offering Pediatric Services, a list of inpatient facilities offering medical services for children
- Genetics Clinics, offered by our partner program, providing services to individuals and families who are at risk for or who have a genetic disorder
- Exceptional Lives Louisiana, an interactive, customizable guide to find supports and resources for those with developmental disabilities
- The Louisiana Early Hearing Detection and Intervention (LA-EHDI) Program, our partner program providing early detection of and intervention for infants with hearing loss
- The Family Resource Center at Children's Hospital of New Orleans, providing parent-and youth-driven support services to families of CYSHCN who are receiving care at the hospital
We also recommend the following pages if you are looking for additional family-driven support services, national and local organizations offering additional resources, or advocacy centers and groups:
Find Organizations by Cause or Condition
Abuse & Neglect
All Disabilities
Amputation
Arthritis
Autism & Neurodiversity
Birth Defects & Prematurity
Blindness/Deafness
Brain Injury
Burns
Cardiovascular
Cerebral Palsy
Craniofacial
Cystic Fibrosis
Developmental Disabilities
Diabetes
Down Syndrome
Epilepsy
Fetal Alcohol Syndrome
Genetic Disorders
Hearing Loss
Lead Poisoning
Mental/ Behavioral Health
Multiple Sclerosis
Muscular Dystrophy
Neurological Disorders
Parkinson and Movement Disorders
Renal Disease
Scoliosis
Sickle Cell Disease
Social Justice
Spina Bifida
Spinal Cord Injury
Abuse & Neglect
All Disabilities
American Academy of Pediatrics
Center for Parent Information and Resources Spanish Portal
Children's Hospital of New Orleans
ComeUnity
Children's Special Health Services Transportation Program
Easter Seals
Exceptional Children's Assistance Center
Exceptional Parents Magazine
Governor's Office of Disability Affairs
Grandparents Raising Grandchildren
Healthcare Marketplace
Healthy Louisiana Plans
Institute for Community Inclusion
Louisiana Council's Advocacy Network (LaCAN)
Louisiana Department of Education
Louisiana Disability Talk
Louisiana Parent Training and Information Center
Louisiana Rehabilitation Services
Medicaid Resource Guide
National Resurce Center for Medical Home (AAP)
Nat'l Dissemination Center for Children with Disabilities (NICHCY)
Ochsner Medical Center for Children
Office of Emergency Preparedness
Pacer Center for Children with Disabilties
People First of Louisiana
Shriner's Hospital for Children
Social Security Administration, Children's Benefits
Supplemental Security Income
Tulane Hospital for Children
Amputation
Arthritis
Autism & Neurodiversity
Birth Defects & Prematurity
Blindness/Deafness
Brain Injury
Burns
Cardiovascular
Cerebral Palsy
Craniofacial
Cystic Fibrosis
Developmental Disabilities
Diabetes
Down Syndrome
Epilepsy
Fetal Alcohol Syndrome
Genetic Disorders
Hearing Loss
Lead Poisoning
Mental/ Behavioral Health
Multiple Sclerosis
Muscular Dystrophy
Neurological Disorders
Parkinson and Movement Disorders
Renal Disease
Scoliosis
Sickle Cell Disease
Social Justice
Spina Bifida
Spinal Cord Injury