Family Resources

The LBDMN Family Resource Guide was developed to give families a source of information about statewide programs and services for children with special health care needs. It contains basic descriptions of available services, information on eligibility criteria, contact information, and web addresses.  

Click to view the LBDMN Family Resource Guide.

 The following are additional links and web resources not found in the Family Resource Guide: 

National Resources

Genetic Alliance: Advocacy, Education & Empowerment

Genetic Alliance is a national coalition of consumers, professionals, and genetic support groups who voice the common concerns of children, adults, and families living with, and at risk for, genetic conditions.  This site contains membership information, a searchable member directory, useful health resources, newsletters, and other publications.

International Birth Defects Information System (IBIS)

This multilingual website offers an overview of birth defects, genetics and teratology; links to support groups and healthcare providers; and factsheets for families and professionals. 

The ARC of the United States

This organization works to promote services and supports for people with mental retardation and other developmental disabilities.  Its website offers fact sheets and other resources pertaining to disabilities, including FAS and other alcohol-related conditions.

March of Dimes

The March of Dimes' mission is to improve the health of babies by preventing birth defects, premature birth, and infant mortality. This mission is carried out through research, community services, education and advocacy. Researchers, volunteers, educators, outreach workers, and advocates work together to give all babies a fighting chance against the threats to their health: prematurity, birth defects, and low birth weight. 

National Center on Birth Defects and Developmental Disabilities (NCBDDD)

The mission of the CDC's National Center on Birth Defects and Developmental Disabilities (NCBDDD) is to promote the health of babies, children and adults and enhance the potential for full, productive living. 

Centers for Disease Control and Prevention: Fetal Alcohol Spectrum Disorders (FASDs)

The mission of the CDC's Fetal Alcohol Spectrum Disorders program is to prevent fetal alcohol syndrome and other prenatal alcohol-related conditions and ameliorate these conditions in children already affected.  

Spina Bifida Association 

The mission of the Spina Bifida Association (SBA) is to promote the prevention of Spina Bifida and to enhance the lives of all affected.


Resources en español




Nuestra misión es mejorar la salud de los bebés al prevenir los defects de nacimiento, el nacimiento prematuro y a mortalidad infantil.  March of Dimes lleva a cabo su misión a través de programas de investigación, servicios comunitarios, educación y apoyo para la salud de los bebés.

National Council of La Raza

La Raza is the largest national Hispanic civil rights and advocacy organization in the United States. This organization works to improve opportunities for Hispanic Americans.

Centro Nacional de Diseminacion de Informacion para Niños con Discapacidades

El Centro Nacional de Defectos Congénitos y Deficiencias del Desarrollo (NCBDDD por sus siglas en inglés), como parte de los Centros Para el Control y la Prevención de Enfermedades (CDC), pretende promover el desarrollo óptimo del feto, el bebé y el niño; prevenir los defectos congénitos y las discapacidades en el desarrollo; y mejorar la calidad de vida y evitar las condiciones secundarias en niños, adolescentes y adultos que viven con alguna discapacidad.

Louisiana Resources

Children's Special Health Services

Children's Special Health Services (CSHS) serves as the principal public agency to assure that children and youth with special health care needs in Louisiana have access to health care services designed to minimize their disability and maximize their probability of enjoying an independent and self-sufficient life. 


EarlySteps is Louisiana's Early Intervention System under the Individuals with Disabilities Education Act (IDEA), Part C. 

Louisiana Genetic Diseases and Lead Poisoning Prevention Section

The Genetic Diseases and Lead Poisoning Prevention program operates a comprehensive newborn heel stick screening program that meets national standards. The program also ensures access to genetic evaluation and counseling to residents in all areas of Louisiana.    

Office for Citizens with Developmental Disabilities (OCDD)

OCDD is within the Department of Health and serves as the Single Point of Entry (SPOE) into the Developmental Disabilities (DD) Services System. OCDD works towards expanding service options to assure that people with developmental disabilities have the opportunity for a meaningful, quality life. The website includes information on how to access services through regional offices; information on OCDD operated Supports and Services Centers, Resource Centers, and Community Support Teams; and links to other sites for state and national resources on developmental disabilities.