Medical Home & Care Coordination for Families and Caregivers
Care Coordination helps assure that children and youth with special health care needs have access to services designed to minimize their disability and maximize their probability of enjoying an independent and self-sufficient life.
Care coordination creates a patient centered practice to support comprehensive delivery of services and follow-up. Coordinated care is valuable to all patient populations, but is essential for meeting the needs of children and youth with special health care needs. Following a medical home model will help improve care coordination across the services a child receives.
Health care transition is the process of changing from a pediatric to an adult model of care. While the age of legal transition is between 18 and 21, the American Academy of Pediatrics recommends that the conversations between parents, patients, and providers should start as early as 12 to 14. Health care transition services help to optimize health and assist youth in reaching their fullest potential.
- Family Involvment in the Transition Process
- Transition Guide - Information to help guide families and youth on the important Transition stages, with resources available in your region of the stat that can help
- Disability information from the federal government- Connecting the disability community to information and opportunities
- NICHY: Basic information about transition planning- National Dissemination Center for Children with Disabilities
- Washington State Department of Health- Adolescent Health Transition Project: A Resource for Adolescents with special health care needs, chronic illnesses and physical or developmental disabilities
- Family to Family Health Information Centers (F2FHICs)- Information and training to families and youth to help them advocate for better health services and outcomes
- The Youthhood-Information to help youth with special health care needs plan for life after high school
- Got Transition? - Site serves as the basis for an information exchange about health care transition
- National Center on Secondary Education and Transition (NCSET) - promoting effective parent involvement in secondary education and transition
- Talking to Your Doctor
- Find a Medicaid Service Provider
Health Insurance Programs
- CSHS Insurance Fact Sheet (Servicio Especial de Salud para Niños Informacion de Seguro)
- Family Voices- financing health care links
- Healthy & Ready to Work: Choosing a Plan
- Medicaid Purchase Plan - Affordable health coverage for people with disabilities who work
- Supplemental Security Income - Federal program that provides cash to meet basic needs and in Louisiana provides Medicaid health insurance benefits
- Social Security Disability Insurance Program - Federal program that provides benefits for adults who became disabled before age 22
- Social Security Administration Ticket to Work Program -An employment program for people with disabilities who are interested in going to work
- Louisiana Vocational Rehabilitation- One-stop career development
- National Collaborative on Workforce and Disability for Youth
- Youth @ Work English or Spanish (en Espanol)
- Easter Seals Job Training and Employment
- The National Center of Secondary Education and Transition
- Think College - Resources and strategies for transition aged students
- Free Application for Federal Student Aid-U.S. Dept. of Education
- Louisiana Department of Education- Career & Technical Education Programs
- Affordable Colleges Online: College Guide for Students with Disabilities - Advice and resources for loans, scholarship; best schools based on institution's disability services; distance learning tips; job resources; additional helpful resources.
- Find a certified driver rehabilitation specialist
- Louisiana Rehabilitation Services/Independent Living Program
- Centers for Independent Living
- Voter Registration
- My Must Have Papers Louisiana - A great information sheet on keeping and protecting your important personal records and information as you move to independence, adapted from the Northeast Massachusetts Community of Practice, University of Massachusets Medical School-Department of Psychiatry.
- Advocacy Center- Provides legal representation, information and referral outreach and training