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- Public Health
- Children & Families
The Louisiana Rare Disease Advisory Council provides resources to public and private agencies in the state that serve individuals diagnosed with rare diseases. The Council is tasked with compiling an annual report that summarizes the findings, activities, and progress for State Fiscal Year 2024 (SFY 2024) of the Council and recommendations for addressing the needs of Louisianans living with a rare disease. The Council operates under the Bureau of Family Health, which provides staff support and policy expertise to assist the Council in fulfilling its mission to provide advice on research, diagnosis, treatment, and education related to rare diseases. The Council's additional duties, outlined in R.S. 40:1122.1 (see Appendix D), include providing expert and clinical advice to the Drug Utilization Review Board in its review of treatments for rare diseases and providing input and feedback to the Louisiana Department of Health and other agencies on matters affecting people with rare diseases.
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